Finding a cure for, or at the very least, a more precise and accurate panel of testing and diagnosis for Ovarian Cancer, has been a cause close to my heart since losing my aunt to the disease in 2004. She was 42 years old and had been misdiagnosed for three years.
September is National Ovarian Cancer Awareness Month, so I thought I would take this opportunity to write about some of the facts surrounding this disease. Ovarian Cancer is know as the silent killer--the cancer that whispers--because the symptoms can be so subtle and easy to miss. The symptoms are "generic," if you will, and are often confused with other conditions, such as Irritable Bowel Syndrome and bladder infection.
This is taken from the Mayo Clinic's web site:
The key seems to be persistent or worsening signs and symptoms. With most digestive disorders, symptoms tend to come and go, or they occur in certain situations or after eating certain foods. With ovarian cancer, there's typically little fluctuation — symptoms are constant and gradually worsen.
Recent studies have shown that women with ovarian cancer are more likely than are other women to consistently experience the following symptoms:
- Abdominal pressure, fullness, swelling or bloating
- Urinary urgency
- Pelvic discomfort or pain
Additional signs and symptoms that women with ovarian cancer may experience include:
- Persistent indigestion, gas or nausea
- Unexplained changes in bowel habits, such as constipation
- Changes in bladder habits, including a frequent need to urinate
- Loss of appetite or quickly feeling full
- Increased abdominal girth or clothes fitting tighter around your waist
- Pain during intercourse (dyspareunia)
- A persistent lack of energy
- Low back pain
- Changes in menstruation
When to see a doctor
See your doctor if you have swelling, bloating, pressure or pain in your abdomen or pelvis that lasts for more than a few weeks. If you've already seen a doctor and received a diagnosis other than ovarian cancer, but you're not getting relief from the treatment, schedule a follow-up visit with your doctor or get a second opinion. Make sure that a pelvic exam is a part of your evaluation.
See your doctor if you have swelling, bloating, pressure or pain in your abdomen or pelvis that lasts for more than a few weeks. If you've already seen a doctor and received a diagnosis other than ovarian cancer, but you're not getting relief from the treatment, schedule a follow-up visit with your doctor or get a second opinion. Make sure that a pelvic exam is a part of your evaluation.
The CA-125 blood test is also available now and serves as a pretty accurate marker in discovering the presence of ovarian cancer in the blood. CA-125 is found on the surface of ovarian cancer cells (as well as normal tissue). A higher than normal level of C-125 can be an indication that cancer {or other disease} is present in the body.
This is not meant to be an alarmist post, but rather an informational one. I think it's good to always keep information like this in the back of your head for reference. If you or someone you know mentions any of these symptoms, it would be a good idea to have it checked out. Perhaps the worst part of my Aunt's story is that she was consistently misdiagnosed for three years. Thankfully, a new level of awareness about this disease has come to the forefront of our collective medical conscious since my aunt lost her battle. The more information you have, the more you can be an advocate for your own health.
Major retailers are donating a percentage of September's profits to the fight against Ovarian Cancer; you can see a list of retailers and items here. For more information on the various OC events going on this September, you can check out this web site. For more information on the ongoing fight against Ovarian Cancer, you can check out the NOCC's web site.
Friday, September 3rd, is the designated day to wear Teal in honor of the fight against Ovarian Cancer, so if you have any fun teal pieces in your closet, tomorrow would be a perfect day to break them out :)
I hope everyone enjoys a happy and safe long Holiday weekend! As always, thanks for reading.
xoxo,
Andi


My mom is a 5 year Ovarian cancer survivor. She too did not get diagnosed until a few years later--luckily she was only Stage III.
ReplyDeleteMy aunt was diagnosed at Stage II and got a hysterectomy as well. I'll post this on Facebook :)
I am sorry to hear about your aunt. I have a family acquaintance who passed away from this disease as well, in her 30's no less. Its so tragic. Thanks for this post!
ReplyDeleteThank you for this thoughtful post Andi. I'm so sorry to hear about your aunt. I think womens cancers in general must be advocated for, because it could happen to any of us.
ReplyDeleteInformative post, Andi. My grandmother passed from ovarian cancer a couple years after my mother passed from thyroid cancer. I now work with hematology/oncology patients and really hate all of the suffering that cancer causes people and their families from all walks of life. I will definitely teal tomorrow.
ReplyDeleteashleybonthego.blogspot.com
Thanks for the info Andi! Funny thing, immediately after I read this I opened up a package from Jane Iredale and my makeup was packed in TEAL confetti! So Strange! Anyways, I took it as a sign and I forwarded your post to all of the women on my contact list!!
ReplyDelete@Devon - Wow, it's so amazing and inspiring to hear about your mom! Congratulations to her and your aunt and your entire family. I love to hear survivor stories.
ReplyDelete@Jessica, thank you so much. It's so especially tragic when it seems to happen out of the blue to young women who have no other indications of ill health. So sorry to hear about your family friend.
@Noelle-I totally agree. Ovarian Cancer is so tricky though because there are none of the self-exams to help early detection. We women really need to be mindful about paying attention to what's going on in our bodies in order to protect against this "silent killer."
@Ashley, so so sorry to hear about your grandmother and mom. I think it's so admirable that you help make cancer patients' lives better day in and day out. You are really making a difference for those patients and their families. What a great contribution to humanity.
@Kristen-Thanks for forwarding the info, it means a lot. This is a difficult disease to detect so the more we know about it, the more we can become our own advocates!
Thank you so much for these comments, they mean so much!
Thank you for posting this. My wonderful Mom passed away March 2, 2007 of ovarian cancer after being misdiagnosed for who knows how long. Doctors kept telling her it was menopause! We need to take control of our own health and be persistent if we're not feeling right! Can't wait to see my Mom in Heaven. Thanks again. Suzanne
ReplyDeleteGreat post - this is the first time I've heard about the Teal campaign. The symptoms list is very informative - but it is scary how subtle the symptoms are - and how people could confuse them easily with other non-fatal diseases.
ReplyDeleteSorry for your family's loss - but what a great post to honour your Aunt's memory.
Sorry about your aunt. My grandma and mother in law are both survivors of ovarian cancer.
ReplyDeleteSuch a thoughtful post for a great cause:)
ReplyDeleteTHANK YOU, THANK YOU, THANK YOU for this post!!! When I opened this up and saw this it made me very happy. I'm a Ovarian Cancer survivor. I will be 2 years cancer free on September 22nd. I was diagnosed with stage IIc on June 2nd 2008. I was lucky and had a tumor(mixed germ cell) which helped me out big time. Because I played off all the other symptoms. So the tumor was a life saver in catching it earlier. This post is very helpful. Thank you again!!!!
ReplyDeleteSuzanne, I am so sorry to hear about your mom. I agree wholeheartedly with your sentiments.
ReplyDeleteJanine-I am so glad to hear about your grandma and mother in law beating this! It inspires so many to hear that it can be beat.
Jill, wow! What an inspiring story. Thank you so much for sharing it. I can't imagine what you went through, but I am so glad that you prevailed. Thanks for the comment!